https://www.ctcfemory.com/ctcf-information daily 0.75 2023-01-06 https://www.ctcfemory.com/ctcf-information/what-is-a-ctcf-protein monthly 0.5 2021-05-30 https://www.ctcfemory.com/ctcf-information/supportgroups monthly 0.5 2021-05-30 https://www.ctcfemory.com/ctcf-information/diagnosticodyssey monthly 0.5 2023-01-06 https://www.ctcfemory.com/home daily 1.0 2023-01-06 https://www.ctcfemory.com/contact daily 0.75 2022-05-27 https://www.ctcfemory.com/livingwithcrd daily 0.75 2022-05-27 https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/c6bea1c8-d444-4321-b424-8db582b6c8ff/Unknown-2.png Living with CRD - Living with CRD Alex’s mom shares her son’s story to show others that they are not alone. We are thrilled when we are able to connect families with each other so that they can share their joys, victories, struggles and difficulties. No matter how mild or severe symptoms may be, it can be hard for any person or family to receive a diagnosis for a condition that is not fully understood yet. We hope Alex’s story is a source of encouragement for you. https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/ab7923bc-dbda-4322-9c57-6216f0512d26/Unknown.png Living with CRD https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/9cc9a470-714a-488b-8118-7b24ad50fda0/Unknown-1.png Living with CRD https://www.ctcfemory.com/ourteam daily 0.75 2023-01-24 https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/1622395358907-U66FEHDIXDJ4SWF9B50K/li-hong.jpg Our Team https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/4af6ab41-131c-4862-b303-64cfaa374223/Garber.jpg Our Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/269d3d58-6836-45b6-9943-65d8ed71a209/Screen+Shot+2023-01-06+at+2.42.55+PM.jpg Our Team https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/1622395714425-8I8ENC29WE7UL7G7EZ19/HsiaoLinWang_Photo_pro.jpg https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/1622395736372-ECS6SO11MB67RQ3MK9X1/gabriela.jpg https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/cfb25ed7-138a-4c84-8cc7-3b3fac831631/IMG-0440.jpg https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/e99621f9-c606-42f7-a73d-1759be711030/sloan-steven.jpg https://www.ctcfemory.com/research daily 0.75 2023-01-06 https://images.squarespace-cdn.com/content/v1/60b1364579cee2658beed87f/1622403810440-M02TA5T8MXWAOLNOA99A/yassine-khalfalli-_c70Nhh6p44-unsplash.jpg Our Research - We believe in equipping patients and their families with information. We believe in collaborating with healthcare providers and researchers in order to improve the quality of our care. What is the purpose of our research? The purpose of our research is to help families and their healthcare providers learn more about how mutations in the CTCF gene can affect individuals. On December 1, 2022, after two years of research, we published our first findings in an attempt to create a better definition of CRD. We hope this serves as a diving board into further research. Find our study here. We are currently in the process of planning our next research. What if I want to participate in future research? Email us (ctcf@emory.edu)! Once we get in touch we can schedule a Zoom call to get to know YOU and YOUR STORY to see if you’d be a good fit for any future research. https://www.ctcfemory.com/donations daily 0.75 2023-01-06 https://www.ctcfemory.com/data-collection daily 0.75 2025-01-22 https://www.ctcfemory.com/data-collection-1 daily 0.75 2025-01-22